With Bailee's cerebral palsy, she has severe physical delays. At 5 years old, she is currently testing at the 6-8 month level. She isn't sitting independently, crawling, standing, or walking. Its hard for us all, but she is trying really hard to figure out the cues to coordinate her body.
Having a physical disability is a challenge in itself, but then when you live in a home that doesn't accommodate any of their needs, this is a whole new challenge. As Bailee keeps growing its getting harder and harder to carry her through the house, plus she is five now and "Miss Independent"!
Unfortunately, home modifications take money, which is hard to find these days. Apparently those trees that grow money are few and far these days. We were able to apply for funding, and with the help of some very generous people and groups, the money came through to redo our floors. We have had carpet since we moved in over five years ago, and when we put Bailee in her gait trainer, she just stands there. Carpet is just way too hard for her to move her gait trainer on. So how will she ever be independent in her home when she can't move an inch?
So, as of yesterday, we are proud parents of a five year old who is using her gait trainer at home!!! We had beautiful laminate floors installed yesterday in our living room, down the hall, and in Bailee's room. So now shew will be able to go from room to room and practice using those little legs and have independence. Bailee was running in circles in the living room, SMILING!!! And she didn't want to get out of her gait trainer.
Thank you to all our donors! We couldn't have done it without your help!
Friday, October 14, 2011
The Moon
I have been so bad about posting recently, just so many things going on. So, I thought I would share one of Bailee's thoughts...I just love the way little kids imagine and talk about things.
As we were driving home the other evening, Bailee was getting a little cranky, so we asked her if she looked out the window what could she see.
Bailee replied "I see the moon!!! HEY! Its following me!!!"
Subscribe to:
Posts (Atom)