Hokie Heaven

We had the wonderful privilege of being part of Special Spectators this past weekend. 

We got to go to a VT football game and have a once in a life time experience. 

Bailee had a wonderful time and it was a magical experience for us all!

Game Face!

Met Coach Beamer!

....and cheerleaders of course!

(this moment was awesome!) 

and Bailee's favorite...the HOKIE BIRD!

all the kids were on the jumbo tron!

and we were too!

Go Hokies!

Friendship

One of my biggest fears as a mom of a little girl with cerebral palsy, is her having friendship. After Bailee started school I learned the real value of friendship and saw how wonderful kids can be. 

Accept me for who I am

I'll do the same for you

Don't try to change at all

Just to yourself be true

We all have faults and failings

It's what makes us all so real

No one can be perfect

With this we have to deal

I love you with your weaknesses

I've learned that I have mine

We all learn to deal with change

It just takes a little time

So be patient with yourself

And I'll be patient too

You've given me the greatest gift

The perfect gift of you 

-Mandi Ducroq

Monday Already?

No clue why we were late for school (again)...

It wasn't because it took me 10 minutes just to convince Bailee to unseal her lips and drink her pediasure with medicine in it. Or the wrestle to get the pullup, shorts, tall socks and braces on. Definitely not the 10 minute escapade getting the special skin tight glove on the noodle fingers. Or getting the 6000 straps secured on the power chair seat & harness. And especially not because of the 10 crashes into the wall and door frames getting the power chair out the door, down the ramp, or into the van...and strapped in again. 

Nope none of those reasons.

Cotton Candy

I remember when we got cotton candy.

It's sugary, puffy, and snow like.

It snows around me and it pops every time you catch it.

It's an avention (invention).

Pop...pop.

Pink.

It tastes sugary and pink....and blue on the inside.

Why I love pretzles...by Bailee

Why Bailee Loves Pretzles...from the mouth of Bailee



Why? They taste good.
They salty.
They are gruten and fat. (I don't know what that means)
They are shaped silly.
I'm eating them.
They crunch.
I love these!