When Bailee was born 10 years ago we were thrown into the unknown world of special needs. We didn't know what to expect or how things would be. We were so stressed and distraught from losing this picture we had of what our family would be.
Then things changed. We realized the real meaning of what having a special needs child was. It isn't that the child just has needs that are different from others, but they truly are special and bring something to your life that you could not get any other way.
These children can truly touch you. They bring joy, and can help show us how to appreciate the little things we were blind to before.
For a few years now I have been working on a dream project of mine....to have greeting cards featuring special needs children. I am so happy to finally have some to offer.
These cards send joyful and fun messages while featuring children with disabilities and helping to bring awareness to how special they are and what they can bring to our own lives.
YOU CAN FIND THE CARDS ON ETSY:
https://www.etsy.com/listing/497458739/greeting-cards-featuring-special-needs?ga_order=most_relevant&ga_search_type=all&ga_view_type=gallery&ga_search_query=special%20needs%20greeting%20cards&ref=sr_gallery_12
Tuesday, December 13, 2016
Sunday, June 12, 2016
Wheelchair Vans - where do we start?
When our child needs a wheelchair to get around we turn to
insurance companies to help cover the expense. Therapist are there to walk you
through the process, suggest what is best for their needs, and even fill out
all the paperwork. But what happens after they get a power chair, and you
cannot fold it into the back of your car? Many families are faced with a tough
path ahead to remove the barrier of being stuck at home, with the only solution
being a ride service that isn't always reliable or available, or purchasing a
wheelchair accessible vehicle.
The most common wheelchair vehicles are mini-vans. They
provide many options to customize to your specific needs. There are two main
options for a ramp...side load and rear load, and you can have manual or
automatic ramps, manual being less expensive. Our family started with a side
load and now have a rear load. Some people love side loads, we really love the
rear load option. It gives us the ability to park in a regular spot when double
spots aren't available (we just can't parallel park) and it really works better
for our daughter's power chair. Picking out a van for your needs is a science
in itself and I suggest talking to other families about their vehicle and the
type of wheelchair they use with it before buying a van. There are so many
factors that we didn't consider because we hadn't ever used an accessible van
before, ie. turning radius of power wheelchair, parking and unloading at the
house, other passengers, space for other
equipment, do you have a road with speed
bumps (the side loads scrape so bad) or a hard driveway to enter, etc. There
are a few places that rent accessible vans, and this can be a great way to try
one out and see what you like.
And now we are at the big question..."How do we get a
wheelchair accessible van?"
There are several options:
First, you can convert a van your already own, or purchase a
used van to convert. However, not just any van can be converted. It cannot be
over 5 years old, and cannot have more than 50,000 miles on it. The base level
conversion, with a manual ramp, starts at $15,000 (not including the cost of
the van.) If your child is on the Virginia ID or the DD waiver you can get up to
$5000/year towards home or vehicle modifications. This won't buy you a van, but
could help with the conversion cost.
The second option is to purchase a new wheelchair van which
will cost close to $60,000.
The third option, which is what we began with, was to buy a
used van that was already converted. Our daughter had a power wheelchair that
was sitting for months at therapy because we didn't have a ramp on our house or
a van to get it home. There are hundreds of used vans for sale with low miles,
you just have to be willing to look and maybe drive a little to get one. Many
accessible vans are purchased by the elderly and are used for doctor
appointments only. There are lots of vans in Florida for sale. A decent used
accessible van usually starts around $8,000- $10,000.
In order to save enough money for this we put all we could
away each month, which sometimes was nothing, and we did many fundraisers. We
had a friend host a motorcycle poker run which brought in a good amount of money,
and some family memebers kicked in as well. We had sold an older vehicle and
anything else we could. We also sold t-shirts and regularly visited local car
lots to talk to the managers about helping with a discount for our family. You
may want to tap into your local church or your child's school about fundraising
ideas as well.
There are a few low interest loans available that have a 10
year payment plan. One source is the NewWell Fund which you can borrow up to
$30,000 (for new or used vans.) ATLFA is another loan source for Virginia
residents only and it has lower rates and longer terms. Braun, a major conversion company, has lists
of Nationwide and State Funding sources. You can apply to as many grants as you
qualify for. https://www.braunability.com/nationwide-funding/ and https://www.braunability.com/wheelchair-vehicle-grants-and-funding-by-state/
It took our family many years to tap into enough funding
sources to access a used van. We are currently on our second van, which we
purchased used and had converted through Freedom Motors. We used the money from
the sale of our first to help with the cost, as well as a loan. It was a
lot of work but so worth it in the long run. It has give both our daughter and
our entire family the freedom we needed.
Saturday, March 19, 2016
Tuesday, February 16, 2016
Tuesday, December 23, 2014
Disney - Day 2
Bailee woke up at 5:30am ready to roll...us, not so much. We headed out to the Gingerbread House for a buffet style breakfast. Its was perfect...then we stopped for a little ice cream (because, why not?)
Day 2 was going to be a full day at Magic Kingdom...I had everything mapped out, but of course we changed plans a little bit. The park was only open until 7pm, which was good because we were exhausted. *Note: when you go into the park, go to Guest Services and get a tag for your stroller that says its also a wheelchair, this helps in some exhibits and for the monorail (you can use the handicapped car and have a ramp to help you on and off.) Get it dated through your last day. This is good at all the Disney Parks. Universal doesn't require this.
Several days a week the village brings characters over for meet and greets...
this morning was Mickey, Belle, Pluto, and Goofey!
Day 2 was going to be a full day at Magic Kingdom...I had everything mapped out, but of course we changed plans a little bit. The park was only open until 7pm, which was good because we were exhausted. *Note: when you go into the park, go to Guest Services and get a tag for your stroller that says its also a wheelchair, this helps in some exhibits and for the monorail (you can use the handicapped car and have a ramp to help you on and off.) Get it dated through your last day. This is good at all the Disney Parks. Universal doesn't require this.
First stop...Ariel!!!
We also took a few trips on Dumbo, met more characters and princesses and caught the parade, and visited Ariel a few more times that night! The only problem with the park closing at 7, was there was Mickey's Christmas beginning that night (a separate ticket required)....so there was a mass of people trying to leave and enter at the same time, which was chaotic.
After Magic Kingdom we went back to GKTW to the evening party with Santa! Bailee got to visit with Santa and pick a present too! (and we had more ice cream!)
Make A Wish Trip to Disney....Day 1
Make A Wish Trip to Disney....Day 1
What a wonderful trip! I am going to try to blog as much as I can! The trip was wonderful, the weather was perfect, except for a little rain here and there and the last day was pretty rainy and cold. Bailee had so much fun and smiled non-stop!
We flew from Virginia to Charlotte, NC and then to Orlando. For our flight, we had Bailee's wheelchair/stroller with us and a carseat to bring on the plane for her to sit on. When we got through security we just went up the the gate and got a tag for the stroller so they would take it under the plane for us and have it waiting for us as soon as we got off the plane. It really helped. A few pieces came off and got a misplaced. I had seen some other strollers/wheelchairs that parents had put a nice laminated note on saying "I know you are in a hurry, but this is my only way to get around, so I appreciate your being careful with my chair." - In hindsight, would've been a good idea.
The flights went good, Bailee travels well. Our last flight in we didn't have any seats together, so we got one person to switch with Ben so he could sit next to Bailee, and then the boyfriend gave me his tickets so I could sit up with Ben and Bailee too. It was really nice. I even got a great picture of the Roanoke Star flying out in the morning fog!
What a wonderful trip! I am going to try to blog as much as I can! The trip was wonderful, the weather was perfect, except for a little rain here and there and the last day was pretty rainy and cold. Bailee had so much fun and smiled non-stop!
We flew from Virginia to Charlotte, NC and then to Orlando. For our flight, we had Bailee's wheelchair/stroller with us and a carseat to bring on the plane for her to sit on. When we got through security we just went up the the gate and got a tag for the stroller so they would take it under the plane for us and have it waiting for us as soon as we got off the plane. It really helped. A few pieces came off and got a misplaced. I had seen some other strollers/wheelchairs that parents had put a nice laminated note on saying "I know you are in a hurry, but this is my only way to get around, so I appreciate your being careful with my chair." - In hindsight, would've been a good idea.
The flights went good, Bailee travels well. Our last flight in we didn't have any seats together, so we got one person to switch with Ben so he could sit next to Bailee, and then the boyfriend gave me his tickets so I could sit up with Ben and Bailee too. It was really nice. I even got a great picture of the Roanoke Star flying out in the morning fog!
When we got to Orlando we were greeted by two wonderful Give Kids the World volunteers. (Give Kids the World is a village that many wish organizations send their families to for the stay.) They helped with our luggage, and took us to get our rental car, and had a map for us to get to the village.
We got to the village after a 25 minute drive and were greeted and brought right to lunch at Katie's Kitchen (Boston Market food, with delicious chicken salad sandwiches!) We checked in and were driven to our villa in a golf cart, and we got settled before going back to see more of the village. All the villas were decorated for Christmas and we even had our own tree inside! She got a Mickey at check-in too, and more gifts everyday in the room. Make sure you pack an extra bag/suitcase for the stuff you will be bringing home!
After unpacking we walked down to check out more of the village. First stop...ice cream palace, ice cream all day long! We also played putt putt and went on a ride on the carousel (twice!) Each night at the village they have different activities, we were too tired to stay out for village idol, but it looked like a lot of fun! We had dinner at the Gingerbread House and ordered pizza delivery later.
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